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Newborn Genome Sequencing At Birth: The Generation Study Progress Update

Louisa was pleased to attend Progress Educational Trust's event "Whole Genome Sequencing at Birth: Implementing The Generation Study" on 23 October 2024. This event provided a progress update on The Generation Study, which is an NHS embedded research study undertaking whole genome sequencing of 100,000 newborn babies at different hospitals across England. The Generation Study's aim is to better inform future decisions about using whole genome sequencing to support newborn screening and understand whether this can improve our ability to diagnose and accelerate access to treatment for rare genetic conditions.
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BBC News: DNA Testing and the Law, ‘I could have lost my child’ after flawed DNA test

Louisa Ghevaert was interviewed on 8 BBC Radio Stations on 23 October 2024 discussing issues and legalities associated with prenatal DNA testing and other forms of DNA testing. This followed news of a woman who received flawed DNA test results identifying the wrong man as her unborn baby's father, resulting in a lengthy legal dispute over custody of her child. The woman was reportedly one of dozens of women who received unreliable DNA test results from a Canadian laboratory which advertised online.
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Posthumous Conception & Surrogacy: The Importance of Consent

The case of Re G v Human Fertilisation & Embryology Authority & Anor [2024] EWHC 2453 (Fam) raises important legal and factual issues about posthumous conception that have not previously been considered by the English Court. This case, in which Louisa Ghevaert Associates was instructed by the applicant mother, concerned the storage and use of a young woman's eggs, who tragically died in June 2023 within six months of receiving a breast cancer diagnosis. The mother sought permission to use her deceased daughter's 20 frozen eggs to have a baby through surrogacy.
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British Fertility Society’s Creating Modern Families Day 2024

Louisa Ghevaert was delighted to to deliver a surrogacy law update on 17 September 2024 at the British Fertility Society’s Creating Modern Families Day 2024 in London as part of the annual BFS Study Week. This training day was well attended by fertility clinicians, embryologists, nurses and other professionals. It also included a lively legal Question & Answer session, during which Louisa was pleased to answer a range of questions about legal parentage, donor conception and fertility treatment law, family building trends, complex personal situations and more.
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